Thursday, April 10, 2014

Kidney Patient 101

I was very fortunate to have someone to talk to after I was diagnosed with Polycystic Kidney Disease (PKD).  PKD is inherited so I was somewhat familiar with what it was and since my mom also had it, she knew a lot of the answers to the questions I had.

Even so, I often felt like I was flying by the seat of my pants.  I was overwhelmed with lack of insurance and I was also overwhelmed with insurance after I had it.  There were questions about medications and types of dialysis and diet and protein and blood tests...and the list went on and on.

Now I am on the other side of dialysis and transplant and sometimes I am still not short on questions.  It can be a difficult road to navigate but having a place to go to get answers will help tremendously.  No, I'm not claiming I have all the answers.  I have some of the answers but not all of them, but now I have a better answer to where to go and who to talk to and what to read to find those answers.

I am tentatively starting this new series on my blog, Kidney Patient 101, in hopes that it might be a help to someone out there.  You may not be a kidney patient yourself but a loved one is and  you just want to ask a question - please feel free.  Want to know what it's like being on dialysis, I can answer that - the typethat I was on, anyway.

So, if you have questions (kidney patient or not), please send them my way.  You can leave a comment below or click on the contact button at the top of this blog.  Don't be shy, ask away!

2 comments:

  1. Wow. What a great post. I think it's wonderful that you are going to share this with others. What a great ministry it will be I'm sure.
    Blessings
    Mikki

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  2. I love this idea and have toyed with doing something similar myself. Transplant is incredible but can be very scary. Having people who can answer some questions or even just be a source of support is so important. Congrats for starting this and from one kidney transplant recipient to another, I'm happy to help in any way I can.

    Bridgette Warner

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