I was very fortunate to have someone to talk to after I was diagnosed with Polycystic Kidney Disease (PKD). PKD is inherited so I was somewhat familiar with what it was and since my mom also had it, she knew a lot of the answers to the questions I had.
Even so, I often felt like I was flying by the seat of my pants. I was overwhelmed with lack of insurance and I was also overwhelmed with insurance after I had it. There were questions about medications and types of dialysis and diet and protein and blood tests...and the list went on and on.
Now I am on the other side of dialysis and transplant and sometimes I am still not short on questions. It can be a difficult road to navigate but having a place to go to get answers will help tremendously. No, I'm not claiming I have all the answers. I have some of the answers but not all of them, but now I have a better answer to where to go and who to talk to and what to read to find those answers.
I am tentatively starting this new series on my blog, Kidney Patient 101, in hopes that it might be a help to someone out there. You may not be a kidney patient yourself but a loved one is and you just want to ask a question - please feel free. Want to know what it's like being on dialysis, I can answer that - the typethat I was on, anyway.
So, if you have questions (kidney patient or not), please send them my way. You can leave a comment below or click on the contact button at the top of this blog. Don't be shy, ask away!